A Doctor Speaks Out About Ageism In Medicine

By Judith Graham MAY 30, 2019

(KHN Illustration/Getty Images Plus)

NAVIGATING AGING

Navigating Aging focuses on medical issues and advice associated with aging and end-of-life care, helping America’s 45 million seniors and their families navigate the health care system.

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Society gives short shrift to older age. This distinct phase of life doesn’t get the same attention that’s devoted to childhood. And the special characteristics of people in their 60s, 70s, 80s and beyond are poorly understood.

Medicine reflects this narrow-mindedness. In medical school, physicians learn that people in the prime of life are “normal” and scant time is spent studying aging. In practice, doctors too often fail to appreciate older adults’ unique needs or to tailor treatments appropriately.

Imagine a better way. Older adults would be seen as “different than,” not “less than.” The phases of later life would be mapped and expertise in aging would be valued, not discounted.

With the growth of the elder population, it’s time for this to happen, argues Dr. Louise Aronson, a geriatrician and professor of medicine at the University of California-San Francisco, in her new book, “Elderhood.”

It’s an in-depth, unusually frank exploration of biases that distort society’s view of old age and that shape dysfunctional health policies and medical practices.

In an interview, edited for clarity and length, Aronson elaborated on these themes

Q: How do you define ”elderhood”?

Elderhood is the third major phase of life, which follows childhood and adulthood and lasts for 20 to 40 years, depending on how long we live.

Medicine pretends that this part of life isn’t really different from young adulthood or middle age. But it is. And that needs a lot more recognition than it currently gets.

Q: Does elderhood have distinct stages? 

It’s not like the stages of child development — being a baby, a toddler, school-age, a teenager — which occur in a predictable sequence at about the same age for almost everybody.

People age differently — in different ways and at different rates. Sometimes people skip stages. Or they move from an earlier stage to a later stage but then move back again.

Let’s say someone in their 70s with cancer gets really aggressive treatment for a year. Before, this person was vital and robust. Now, he’s gaunt and frail. But say the treatment works and this man starts eating healthily, exercising and getting lots of help from a supportive social network. In another year, he may feel and look much better, as if time had rolled backwards.

Q: What might the stages of elderhood look like for a healthy older person?

In their 60s and 70s, people’s joints may start to give them trouble. Their skin changes. Their hearing and eyesight deteriorate. They begin to lose muscle mass. Your brain still works, but your processing speed is slower.

In your 80s and above, you start to develop more stiffness. You’re more likely to fall or have trouble with continence or sleeping or cognition — the so-called geriatric syndromes. You begin to change how you do what you do to compensate.

Because bodies alter with aging, your response to treatment changes. Take a common disease like diabetes. The risks of tight blood sugar control become higher and the benefits become lower as people move into this “old old” stage. But many doctors aren’t aware of the evidence or don’t follow it.

Q: You’ve launched an elderhood clinic at UCSF. What do you do there?

I see anyone over age 60 in every stage of health. Last week, my youngest patient was 62 and my oldest was 102.

I’ve been focusing on what I call the five P’s. First, the whole person — not the disease — is my foremost concern.

Prevention comes next. Evidence shows that you can increase the strength and decrease the frailty of people through age 100. The more unfit you are, the greater the benefits from even a small amount of exercise. And yet, doctors don’t routinely prescribe exercise. I do that.

It’s really clear that purpose, the third P, makes a huge difference in health and wellness. So, I ask people, “What are your goals and values? What makes you happy? What is it you are doing that you like best or you wish you were doing that you’re not doing anymore?” And then I try to help them make that happen.

Many people haven’t established priorities, the fourth P. Recently, I saw a man in his 70s who’s had HIV/AIDS for a long time and who assumed he would die decades ago. He had never planned for growing older or done advance care planning. It terrified him. But now he’s thinking about what it means to be an old man and what his priorities are, something he’s finally willing to let me help him with.

Perspective is the fifth P. When I work on this with people, I ask, “Let’s figure out a way for you to keep doing the things that are important to you. Do you need new skills? Do you need to change your environment? Do you need to do a bit of both?”

Perspective is about how people see themselves in older age. Are you willing to adapt and compensate for some of the ways you’ve changed? This isn’t easy by any means, but I think most people can get there if we give them the right support.

Dr. Louise Aronson(ANNA KUPERBERG PHOTOGRAPHY)

Q: You’re very forthright in the book about ageism in medicine. How common is that?

Do you know the famous anecdote about the 97-year-old man with the painful left knee? He goes to a doctor who takes a history and does an exam. There’s no sign of trauma, and the doctor says, “Hey, the knee is 97 years old. What do you expect?” And the patient says, “But my right knee is 97 and it doesn’t hurt a bit.”

That’s ageism: dismissing an older person’s concerns simply because the person is old. It happens all the time.

On the research side, traditionally, older adults have been excluded from clinical trials, although that’s changing. In medical education, only a tiny part of the curriculum is devoted to older adults, although in hospitals and outpatient clinics they account for a very significant share of patients.

The consequence is that most physicians have little or no specific training in the anatomy, physiology, pharmacology and special conditions and circumstances of old age — though we know that old people are the ones most likely to be harmed by hospital care and medications.

Q: What does ageism look like on the ground?

Recently, a distressed geriatrician colleague told me a story about grand rounds at a major medical center where the case of a very complex older patient brought in from a nursing home was presented. [Grand rounds are meetings where doctors discuss interesting or difficult cases.]

When it was time for comments, one of the leaders of the medical service stood up and said, “I have a solution to this case. We just need to have nursing homes be 100 miles away from our hospitals.” And the crowd laughed.

Basically, he was saying: We don’t want to see old people; they’re a waste of our time and money. If someone had said this about women or people of color or LGBTQ people, there would have been outrage. In this case, there was none. It makes you want to cry.

Q: What can people do if they encounter this from a doctor?

If you put someone on the defensive, you won’t get anywhere.

You have to say in the gentlest, friendliest way possible, “I picked you for my physician because I know you’re a wonderful doctor. But I have to admit, I’m pretty disappointed by what you just said, because it felt to me that you were discounting me. I’d really like a different approach.”

Doctors are human beings, and we live in a super ageist society. They may have unconscious biases, but they may not be malicious. So, give them some time to think about what you said. If after some time they don’t respond, you should definitely change doctors.

Q: Do you see signs of positive change?

Absolutely. There’s a much larger social conversation around aging than there was five years ago. And that is making its way to the health system.

Surgeons are thinking more and more about evaluating and preparing older adults before surgery and the different kind of care they need after. Anesthesiologists are thinking more about delirium, which has short-term and long-term impact on older adults’ brains. And neurologists are thinking more about the experience of illness as well as the pathophysiology and imaging of it.

Then you have the age-friendly health system movement, which is unquestionably a step in the right direction. And a whole host of startups that could make various types of care more convenient and that could, if they succeed, end up benefiting older people.

Judith Graham: @judith_graham

Why Age When You Can Sage?

This expert offers what she calls the three keys to ‘sage-ing’


Sage-ing

Credit: JDS Malacky | Flickr

When I worked as a professor of business management, my mentor, Elmer Burack, once told me, “The world is full of baby boomers who will be leaving their careers. Once boomers leave the workplace, they won’t know what to do with themselves. You can help them figure it out.”

Elmer sent me the book From Age-ing to Sage-ing:  A Revolutionary Approach to Growing Older by Zalman Schachter-Shalomi and Ronald S. Miller. Reading it changed my life. Now I blog about “sage-ing” © (becoming an elder) and have a monthly podcast titled Becoming a Sage where I interview thought leaders in the field of positive aging. Because of my involvement in Sage-ing International, I read and watch everything with my “sage-ing lens.” I’ve concluded: Why age when you can sage?

In my workshops, I ask participants to picture someone who is aging and to describe the characteristics. They will shout: bitter, regret, denial, withdrawn, not interested in doing much. Then I ask them to envision someone who is sage-ing and to identify the differences. For a sage, people will say: wise, kind, generous, relevant, engaged.

Everyone says they would prefer to spend time with a Sage.

First Key to Become a Sage: Live Life With Meaning and Purpose

To become a Sage, one of the key components is living life with meaning and purpose. Research shows that people who have a reason for getting up in the morning live longer and healthier lives than those who don’t. (In the Blue Zone of Okinawa, Japan, this is called ikigai.)

As Gregg Levoy, author of Vital Signs: The Nature and Nurture of Passion and Callings: Finding and Following An Authentic Life told me: “Passion and purpose is not a place you get to, but it is a place you come from. It is a skill and a mindset you have or don’t have toward life. In fact, I call it a survival mechanism.”

Second Key to Become a Sage: Embrace Your Mortality

Another way to become a Sage, rather than just age, is by embracing your mortality.

Dr. Timothy Ihrig, who practices palliative medicine (caring for the most vulnerable people) around the world and helps other health care providers improve the care they offer this population told me: “Most people do not fear death as is commonly believed. People fear getting dead. They fear the journey of dying.”

As the late professor Morrie Schwartz, who had ALS, told author Mitch Albom in Tuesdays With Morrie: “When we learn how to die, we learn how to live.”

Embracing death reminds us that our time can end any day, which frees us to live more fully. Sages want to make the most of their time learning, building community and in service to others and to the environment.

Third Key to Become a Sage: Leave a Legacy

Another key aspect of sage-ing is leaving a legacy. Most people want to know their life mattered.

Margaret (Meg) Newhouse, author of Legacies of the Heart: Living a Life that Matters, told me she defines legacy as “the footprint of our lives that lives on after our death and into another generation … But the heart is the key to a more positive legacy rather than ego focused contributions such as look at all that I have done with my life.”

In my workshops, I usually ask: “So when do we leave a legacy?” People will say: When we retire. When we die. When we leave. I ask, “When we leave what?”

We actually leave a legacy all the time every day. I call this “bread crumb legacy,” because we are continually leaving bread crumbs along the way.

We leave part of our legacy when we leave a meeting. When we leave a conversation. When we leave every interaction.

When we think about the legacy we are leaving — positive or negative — we are conscious of what we say, how we behave and how we treat others.

The Path to Sage-ing

If you want to be on the path to sage-ing, rather than aging, my advice is to:

  • Discover your meaning and purpose. What do you want to do with your time, money and energy? What will get you up and keep you going?
  • Learn to embrace death. What is your perception about death? How might you embrace it?
  • Think about the legacy you want to leave. What difference are you making? How do you want to be remembered?

Why age when you can sage?  Simple: Everyone wants to be in the company of a Sage.

Jann E. Freed

 By Jann E. FreedJann E. Freed is the author of Leading With Wisdom: Sage Advice From 100 Experts. She has over 30 years of experience teaching organizational leadership and development and is a consultant with The Genysys Group.

Conscious Aging poem

she said
I am rare.
I am the standing ovation
At the end of the play.
I am the retrospective
Of my life as art
I am the hours
Connected like dots
Into good sense
I am the fullness
Of existing.
You think I am waiting to die…
But I am waiting to be found
I am a treasure.
I am a map.
And these wrinkles are
Imprints of my journey
Ask me anything.
by Samantha Reynolds

Older Adulthood

  by Joyce Ann Mercer, CALLING ALL YEARS GOOD: CHRISTIAN VOCATION THROUGHOUT LIFE’S SEASONS, Kathleen A. Cahalan and Bonnie J. Miller-McLemore, editors, pgs. 190-191

     Those in the initial phases of older adulthood often note the way that gradually the deaths of friends and loved ones become less of an exceptional occurrence and more the norm. A central characteristic of this stage of life is the inevitability and constancy of loss. The regularity of loss accelerates across subsequent years, such that people in their seventies and beyond begin to speak of “outliving all my friends” or being the only one left in their families so that “it all ends with me.”
     With the death of age-mates comes an increasing sense that there is no one who can listen to and validate the stories of one’s experiences of growing old. There is a loneliness inherent in losing the people who hold our stories with us.
     …One of the most common experiences named by older adults is loneliness. As loss becomes cumulative and social supports diminish, there is the general loneliness of having too few companions. Sometimes retirement and its aftermath awakens the relational emptiness that can characterize this life period, a state particularly common among men in late adulthood who were socialized to form relationships in and around work roles.
     …If loneliness is common, one of the most evident forms of loneliness in older adulthood is that which overtakes a person after the death of a spouse or partner. In John Bowlby’s studies on attachment, he identified a phenomenon he termed “pining away,” the intense yearning after the loss of an intimate relationship…The specificity of spousal loss cannot be ameliorated by adding other relationships such as friends or additional companions, as if the loneliness were generic That does not mean that a person suffering such a loss is not aided by support and friendship Older adults who have extensive social support suffer less from depression. Loneliness thus becomes one of the challenging staples of older adult life.
     How might the loneliness of old age relate to vocation in this life phase? If we understand vocation not as a possession, something an individual “has,” but rather as an interaction with God’s purposes that takes place within a relational ecology in which one participates with others, then it seems possible to imagine loneliness in older adulthood evoking the community’s capacities to provide a web of relationships in which older adults can grieve well. In turn, older adults suffering losses in the midst of the community “teach us how to grow through losses instead of being defeated by them,” writes Paul J. Wadell in “The Call Goes On: Discipleship and Aging.”